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The Ehlers-Danlos Society too often hears from people with EDS or HSD that once diagnosed there is often little or no follow-up care, and patients are not given information on their condition, how to self-manage aspects of their care, adaptions that can be made to improve quality of life, or where to find support for a lifelong, chronic condition

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[35] Since the presence of 1,4-dioxane was recognized, many manufacturers have implemented purification processes, such as vacuum and steam stripping, to reduce its concentration in finished products